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RARE DISEASE 

Orphan & Rare Disease in
Federal (VA / DoD) Markets  

Ensuring access for warfighters, veterans, and their families

Due to service-connected comorbidities and military exposures, veterans may face a heightened risk of both worsened genetic conditions and specific rare diseases, including AL amyloidosis, chloracne, Hodgkin's disease, and multiple myeloma.

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Rare cancers comprise 25% of all VA cancer diagnoses & VA is developing a Rare Cancers Program

The Rare Cancers Program focuses on providing high quality, evidence-based care regardless of where a Veteran lives by using National TeleOncology; equitable and comprehensive care through clinical decision support; molecular testing to guide precision oncology treatments; and rare cancer research.   

VA defines rare cancers as those with an annual U.S. incidence rate of fewer than 6 cases per 100,000 individuals in the general U.S. population

 

This standard was adopted by the American Cancer Society and is used by the National Institutes of Health.

Service Connection for Rare Respiratory Cancers 

VA determined through a focused review of scientific and medical evidence there is biological plausibility between airborne hazards and carcinogenesis of the respiratory tract — and the unique circumstances of these rare cancers warrant a presumption of service connection. The rarity and severity of these illnesses and the reality these conditions present, is a situation where it may not be possible to develop additional evidence, prompted VA to take this action.

About the VA's Complex Exposure Threats Center of Excellence (CETCE)

 

CETCE is a national VA center to manage, evaluate, care for, and study Veterans and VA Cohorts of new, complex and poorly understood military occupational and environmental exposures.

 

Resources & Insights 

DID YOU KNOW?

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Our Work in Rare Disease

Our Work

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We’ve recently supported access to critical therapies in rare disease including disease modifying and cell / gene therapies:

  • Myelofibrosis

  • Spinal Muscular Atrophy

  • Cystic Fibrosis

  • Recurrent Pericarditis

  • Glioma (various)

  • Lymphomas (various)

  • Idiopathic Pulmonary Fibrosis

Getting Started

Revolve offers a GROW Workshop - providing a strategic ideation session tailored for companies aiming to penetrate or expand within the federal healthcare market. This two-hour, high-impact workshop is designed to assess your current positioning, uncover untapped opportunities, and chart a feasible path to accelerate product adoption in these complex health systems

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WE'RE READY WHEN YOU'RE READY

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