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RARE DISEASE 

Orphan & Rare Disease in
Federal (VA / DoD) Markets  

Ensuring access for warfighters, veterans, and their families

Due to service-connected comorbidities and military exposures, veterans may face a heightened risk of both worsened genetic conditions and specific rare diseases, including AL amyloidosis, chloracne, Hodgkin's disease, and multiple myeloma.

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Rare cancers comprise 25% of all VA cancer diagnoses & VA is developing a Rare Cancers Program

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The Rare Cancers Program focuses on providing high quality, evidence-based care regardless of where a Veteran lives by using National TeleOncology; equitable and comprehensive care through clinical decision support; molecular testing to guide precision oncology treatments; and rare cancer research.   

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VA defines rare cancers as those with an annual U.S. incidence rate of fewer than 6 cases per 100,000 individuals in the general U.S. population

 

This standard was adopted by the American Cancer Society and is used by the National Institutes of Health.

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Service Connection for Rare Respiratory Cancers 

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VA determined through a focused review of scientific and medical evidence there is biological plausibility between airborne hazards and carcinogenesis of the respiratory tract — and the unique circumstances of these rare cancers warrant a presumption of service connection. The rarity and severity of these illnesses and the reality these conditions present, is a situation where it may not be possible to develop additional evidence, prompted VA to take this action.

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About the VA's Complex Exposure Threats Center of Excellence (CETCE)

 

CETCE is a national VA center to manage, evaluate, care for, and study Veterans and VA Cohorts of new, complex and poorly understood military occupational and environmental exposures.

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Resources & Insights 

DID YOU KNOW?

Our Work in Rare Disease

Our Work

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We’ve recently supported access to critical therapies in rare disease including disease modifying and cell / gene therapies:

  • Myelofibrosis

  • Spinal Muscular Atrophy

  • Cystic Fibrosis

  • Recurrent Pericarditis

  • Glioma (various)

  •  Lymphomas (various)

  • Microscopic Polyangiitis

  • Idiopathic Pulmonary Fibrosis

  • Hemophilia A

Getting Started

Revolve offers a GROW Workshop - providing a strategic ideation session tailored for companies aiming to penetrate or expand within the federal healthcare market. This two-hour, high-impact workshop is designed to assess your current positioning, uncover untapped opportunities, and chart a feasible path to accelerate product adoption in these complex health systems

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WE'RE READY WHEN YOU'RE READY

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